The 6-year-old TikTok star died on December 9, 2024, in her parents’ bed, after battling diffuse intrinsic pontine glioma (DIPG), a rare and aggressive brain tumor. Her parents, Joe and Elisha Smith, shared the devastating update, revealing they stayed by her side during her final moments.
A Journey of Strength and Courage
Earlier this year, Joules was diagnosed with DIPG, an incurable brain tumor that primarily affects children. Doctors gave her only nine months to live, marking the start of an emotional journey for the Smith family. Despite her diagnosis, Joules continued to spread joy on TikTok, captivating millions with her dances and radiant personality.
Her father, Joe, first shared her diagnosis on TikTok, explaining that Joules began experiencing unusual symptoms that led to the discovery of the tumor. Following tests at King’s College Hospital in London, the devastating diagnosis was confirmed. Joe heartbreakingly admitted, “She will start to deteriorate, and we have got to sit back and watch our beautiful, funny little girl fade away.”
Joules’ Impact on TikTok and Beyond
Joules’ strength and positivity inspired countless people online. Her story gave rise to the viral TikTok trend, “Dancing for Joules,” which raised awareness about childhood cancer. Joe encouraged fans to continue the trend, saying, “Let’s carry on dancing for our beautiful little Joules because I know she would still be dancing.” Even in her final months, Joules’ light brought hope and joy to her followers.
Community Support
Following her diagnosis, family friend Kirk Norcross launched a GoFundMe page to help the Smith family create lasting memories with Joules. The fundraiser raised over $120,000, allowing the family to focus on their daughter without financial concerns. Joe and Elisha expressed deep gratitude, saying the support enabled them to give Joules the best life possible during her remaining months.
A Heartfelt Farewell
On December 9, 2024, Joules passed away peacefully in her parents’ bed, surrounded by love. Joe described his daughter as “the bravest, kindest, most beautiful little girl,” while her mother, Elisha, wrote a touching tribute: “We are so proud of you, princess. You made this world a better place.”
The Smith family has invited supporters to a memorial service on December 27, 2024, at The Garden of Eden Crematorium in Kent, England. They plan to honor Joules’ life with a celebration worthy of her incredible spirit.
@gingerjoeandjoules We love you our little dancing queen ????#dancingforjoules ♬ original sound – gingerjoeandjoules
A Legacy That Lives On
Though Joules is no longer with us, her legacy continues to inspire. Her story has brought attention to childhood cancer, and her unwavering spirit has touched millions. Joules’ memory lives on through every dance, every smile, and every person she inspired to live with courage and love.
