Diagnosed with Xeroderma Pigmentosum, Woman Finds Love

A woman diagnosed with Xeroderma Pigmentosum discovers love and triumphs in the face of adversity—a heartwarming tale of resilience.

Diagnosed with Xeroderma Pigmentosum at the age of three, Karine de Souza, a 29-year-old woman from Fortaleza, Brazil, has faced online and real-life criticism over her appearance. However, she defied negativity, embracing her reality with a radiant smile.

Due to her skin condition, de Souza diligently applies SPF100 Sunscreen to her entire body every two hours. She spends her time indoors, with closed curtains, ensuring utmost protection.

Diagnosed with Xeroderma Pigmentosum

The Brazilian native faces the challenging reality of being diagnosed with Xeroderma Pigmentosum.

Her doctors caution that sunlight exposure heightens skin cancer risks due to her DNA repair deficiency.

Karine, living with the constant threat of Melanoma, defies her skin condition, embracing life to its fullest despite the hardships she faces.


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“I am the target of a lot of glances, a lot of people staring at me, some of them distance themselves,” she told Truly.

Despite enduring over 130 surgical operations to remove sun-induced lesions, De Souza shared the heartbreaking reality of facing constant disgust and hurtful remarks from people whenever she steps out of her house.


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Karine’s life is constrained by strict rules: venturing outdoors only at night, on rainy days, or for medical visits, all to avoid even a single moment of sunlight due to her extreme sensitivity.

Despite believing that love was unattainable, Karine’s life took an unexpected turn when she connected with her soulmate on social media three years ago.


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Their journey began in the realm of online conversations, where Edmilson, now her husband, was deeply captivated by her unwavering strength and profoundly moved by her extraordinary story.

Their blossoming romance sparked curiosity among many, as they frequently posted captivating photos of their journey together on social media, leaving people intrigued about the authenticity of their relationship.

“We have already read many offensive comments calling me a monster, deformed, a zombie,” she said.


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Following their marriage, Edmilson lovingly embraced Karine’s three children from her previous relationship, fostering a harmonious family life. Their joyous journey recently expanded with the arrival of their precious daughter, completing their happy and fulfilled existence. Karine and Edmilson welcomed their daughter in January 2023, and she is now six months old, growing and thriving.

“ZAYA my miracle, my princess welcome, mommy, daddy and your siblings love you very much. You came to bring us blessing and a lot of joy, you are my precious light,” she wrote on Instagram.

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Written by DADADEL

Adelaida, the founder of Dadadel Creative, boasts a multifaceted background, blending expertise in software engineering, copywriting, and digital marketing. Prior to establishing her agency, she honed her skills as the former Head of the News Department at a regional media outlet, and also amassing 18 years of experience as a host. She has a penchant for sarcasm, a passion for lifestyle topics, and an undeniable love for cats.

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